Welcome

Ohio Gathering, 2012

Ohio Gathering, 2012

Welcome to the NF2 Crew! We are an online support group for those with Neurofibromatosis Type 2 (NF2).

NF1 is the more common type of Neurofibromatosis which affects 1 in 3,500 whereas NF2 strikes every 1 in 33,000 people. Since NF2 is the less common form, you may find it hard to find others who have NF2.

The NF2 Crew was formed to address this issue. Members correspond with and meet other other people with NF2 from around the globe. A most often heard phrase from new members is, “I didn’t think anyone else was like me, I fit in here!” We exchange everything from information on treatments and research to trivia and jokes. One of our goals is accessibility and we offer a variety of Internet-based communication mediums.

If you are a person with NF2, join us at the Crew! You can find us on Facebook. Don’t have Facebook? Subscribe to the mailing list at Yahoo Groups.

For more information on NF2, a few excellent sources are: NF2 – Information & Services, AdvoCure NF2, Inc., Children’s Tumor Foundation, and NF Network. We also have many NF2 related resources on our Links page.

DisclaimerWe are not medical experts nor affiliated with any health care organization or any other company. No information on this site or obtained from NF2 Crew members should be treated as medical advice and should only be used in conjunction with consultation by a medical professional.

  This website is dedicated in loving memory of Peter Brayman (September, 1975 – December, 2008) 

Comments are closed.